Reference
Cranwell, M. (2023). Continuous Change as a Disruptive Force: Exploring Homecare Transitions for Carers of People Living with Dementia in Scotland. International Journal of Educational and Life Transitions, 2(1): 8, pp. 1–17. DOI: https://doi.org/10.5334/ ijelt.47
Lay Summary
Five people who lived with someone with dementia as their main carer and were not receiving any more than six hours per week of paid homecare took part in this study. The aim of the study was to learn about the carers’ experiences of the transition from being the main carer to sharing care with paid homecare workers.
Five carers completed one interview each in which they talked about their day to day lives, the difficult and enjoyable parts of being a carer, and how they felt about homecare beginning. Two of those carers then started to receive more homecare and completed a further seven interviews each over the following six months. The article explores the experiences of the two people who continued in the study for six months and found that the changing nature of dementia and the rigidity of homecare services caused carers to live in an uncomfortable and powerless state of multiple, interconnected types of liminality.